FCI & HDRUK Special Interest Group on PROMs (Patient-reported outcome measures)

The Faculty of Clinical Informatics (FCI) and Health Data Research UK (HDRUK) are establishing a Special Interest Group focussing on the interoperability, and possible visualisation, of PROMs (patient-reported outcome measures).

Please register your interest below.

The group will be holding their first meeting on 27th May, 12.30 – 1.30pm, which will include presentations from those who are setting the group up on PROMs and the aims of the SIG. These presentations will be followed by a discussion on how to take the group forward and Terms of Reference.

The panel of presenters will be:

  • Dr Sally Lewis - National Clinical Director for Value-Based Healthcare, NHS Wales, FCI Fellow

  • Prof Neil Sebire - Chief Research Information Officer (CRIO) Great Ormond Street Hospital, HDR UK Chief Clinical Data Officer, FCI Fellow

  • Said Shadi - Assistant Director, Health Informatics and Analytics at Value in Health, NHS Wales

If you’d like to join, please sign up via Eventbrite. The Special Interest Group is open and not limited to FCI members. 

We look forward to seeing you there!

Patient-reported outcome measures (PROMs) are structured questionnaires that enable patients to provide detailed information about their quality of life and the symptom burden which may be specific to the condition that they have. To find out more, read Sally and Said’s blog on the FCI website and Alice Turnbull’s blog on the HDRUK website.